Hi RCHS!!! We are participating in the CHOC Walk in the Park on Sunday, October 30, 2016 at the Disneyland®Resort. We will be walking in honor of Justin, our very own Cougar family, Colby and Tricia Helper's son.
Justin has overcome amazing obstacles in 9 1/2 years and continues to fight. He has lissencephaly, which means smooth brain. As with a lot of conditions there is a spectrum from mild to the most severe cases. Justin, unfortunately, is at the most severe end. Children with lissencephaly are severely neurologically impaired. Justin has several seizures a day, even with seizure medications, is fed through a feeding tube and is significantly developmentally delayed.
Justin's chronic condition has made him a frequent visitor to Children's Hospital Orange County. He has been hospitalized an average of three times a year since birth, at times for several weeks. He also sees 6 specialty doctors on a regular basis - Neurology, Gastroenterology, Pulmonology, Metabolic, Urology, and Orthopedic. CHOC has helped keep Justin healthy, safe and comfortable and has given excellent medical expertise needed for his rare condition. In addition, they have provided exceptional family centered care. They have provided a comfortable environment as our home away from home. We would like to give back to CHOC what they have given to Justin. Thank you in advance!!! #whyiwalkforchoc
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